Racing for Autism

Targa Newfoundland takes place in September of each year. For the last 3 years, the Halleran family from Paradise has entered a team, which they've called Racing for Autism. (Here is their website and here is their Facebook fan page.) They started the team after their daughter was diagnosed with autism. To raise awareness for Autism Spectrum Disorders, they place puzzle piece stickers all over their racing cars. These puzzle pieces that hold the names of children around the world who have been diagnosed with autism. This year, Jesse's name is on the car. And so is his picture. I cannot wait to see the car in person later this year.

For your viewing pleasure...

This picture shows Jesse's puzzle piece (the pink one at the bottom)

And here's his sweet face. 

Many, many thanks to Ray and Julie Halleran for all that they do to raise awareness for all children on the spectrum.

Now we're getting somewhere

So sorry for slacking on this blog. There's just so much going on right now. My husband, Steve, was in a car accident on Thursday. Steve is mostly OK, though he's having some back pain and had to take some time off work. The car is toast. We were really hoping to get another couple of years out of Steve's car, so that we wouldn't have to be making 2 car payments, but God/fate/karma/whatever had other plans. I'm sure we'll get through, but we've been really busy trying to get all of this straightened out.

In the meantime, Jesse is doing really well. His language is really coming along. His list of words, both imitated and spontaneous, grows daily. His SLP is really happy with his progress. I also have a book I'm reading that is giving me some great ideas on how to help this along at home as well. It's called Motivate to Communicate. It's written for kids on the spectrum, but I have a feeling it would really work well for kids with a "simple" speech delay as well. I'm not that far into it yet, but I'm hoping to have it finished by the weekend, and can give you a review of it.

We've also been assigned a senior therapist! Yay!!! She's actually still training, so her supervisor will be coming along with her and helping her, which is great. They both paid us a visit this morning. We mostly just went over Jesse's history and what our main concerns were. They also gave us a bit of an overview of what the next few weeks will consist of. On April 12th, they'll return and do Jesse's evaluations, and then on April 19th (tentatively) we'll have Jesse's ISSP (Individualized Supports and Services Plan...I think that's what it stands for). That's when we'll come up with the plan of attack for Jesse. It's only when we have the ISSP that we get funding for the home therapist. (Speaking of which, we still haven't hired anyone yet. I have about 40 resumes here, though, to look through.)

I also keep meaning to do a little book report, of sorts, on the book I just finished a couple of days ago. It's called Changing the Course of Autism: A Scientific Approach for Parents and Physicians. It's not an easy read by any stretch of the imagination. There's a lot of anatomy and physiology and immunology knowledge needed to understand it well. It did challenge me to recall a lot of what I learned in my B.Sc. and my B.N. I think it's worth reading though, for any parent who has a child on the spectrum. (And for any doctor treating a child on the spectrum.) Jesse's waking up from his nap, so I can't get into it now, but I will definitely give a review of this book later.

Light bulb moment

I hope I don't have to pay Dr. Phil every time I use that, but it's the easiest way to describe how things clicked for me when I watched Dr. Temple Grandin's lecture. At about 00:02:43 she describes auditory issues in kids with ASDs. Even though auditory threshold ("hearing") is normal, their ability to hear auditory detail can be impaired. In addition to apraxia, I think that this may be part of why Jesse has such trouble with speech. One of the reasons I think this is because of his animal sounds. He makes the sounds for dog, cat, duck, and bear. But he drops the first part of each sound. Instead of "woof" it's "oof." So instead of "meow" it's "ow." Instead of "quack quack" it's "ack ack." Instead of "roar" it's "argh."

Here's a video to demonstrate what I mean. This was taken at the beginning of January of this year, just before Jesse's 2nd birthday.



The words that he has right now that start with a hard consonent sound (i.e. "mom," "da," "baby") are words that we've worked a lot on and enunciated the hell out of to try to get him to repeat. He has a lot of trouble acquiring words...a lot of trouble with consonant sounds. For example, he says "asu" for "thank-you."

Of course, I could be completely off the mark here and this might not be an issue at all. Either way, I hope that Jesse's new SLP can give us the tools to overcome whatever obstacles are in the way of Jesse being able to communicate with us.

And I thought I'd throw this in here...just because he's cute as hell: